Can a special needs trust subsidize the purchase of medical-grade skincare?

The question of whether a special needs trust (SNT) can cover medical-grade skincare is nuanced and depends heavily on the specific terms of the trust, the beneficiary’s needs, and applicable state and federal regulations. Generally, SNTs are designed to supplement, not replace, public benefits like Medi-Cal or Supplemental Security Income (SSI). However, carefully crafted trusts can allow for purchases that enhance a beneficiary’s quality of life without jeopardizing those essential benefits. Approximately 26% of adults in the United States have some type of disability, and for many, specialized skincare is a crucial component of their ongoing medical care and overall well-being. It’s important to remember that SNTs are incredibly individualized, and what’s permissible for one beneficiary might not be for another.

What qualifies as a “medical” expense within a special needs trust?

To understand if medical-grade skincare is permissible, we must first define what constitutes a ‘medical expense’ under SNT guidelines. Typically, this includes things like doctor’s visits, medications, therapies, and medical equipment. However, the definition is broadening, particularly concerning items that demonstrably improve health outcomes or prevent further medical complications. Medical-grade skincare, when prescribed by a physician to treat a specific dermatological condition – like severe eczema, psoriasis, or sensitivity resulting from radiation treatment – can fall into this category. “A preventative measure is always more cost-effective than a reactive one,” a sentiment echoed by many trust administrators. The key is proving a direct medical necessity, not simply a desire for cosmetic enhancement.

How do SNT rules interact with Medi-Cal eligibility?

Medi-Cal, California’s Medicaid program, has strict income and asset limits. A significant concern with SNTs is ensuring that distributions don’t disqualify the beneficiary from receiving these vital benefits. Distributions for “in-kind support and maintenance” – meaning items that cover basic needs – are generally allowed, but there’s a cap. Distributions exceeding this cap can be considered ‘deemed income’ and jeopardize eligibility. “The process is less about ‘can we’ and more about ‘how do we’ ensure compliance,” emphasizes Ted Cook, a San Diego trust attorney specializing in special needs planning. Therefore, detailed documentation justifying the medical necessity of skincare is paramount, often requiring a letter from the beneficiary’s dermatologist outlining the condition and how the specific products are integral to treatment.

Can a first-party SNT handle these purchases differently than a third-party SNT?

The type of SNT – first-party (self-settled) or third-party – significantly impacts distribution rules. First-party SNTs are funded with the beneficiary’s own assets and have stricter rules to avoid Medicaid recoupment. Distributions are generally limited to needs not covered by public benefits. Third-party SNTs, funded by someone other than the beneficiary (like parents or a grandparent), offer more flexibility. They are not subject to Medicaid recoupment and can be used for a broader range of needs, including those that enhance quality of life without necessarily being ‘basic’ necessities. For example, a third-party trust might cover the full cost of medical-grade skincare, while a first-party trust might only cover a portion, or require a co-pay from other resources. Currently, around 15% of SNTs are first-party, reflecting the preference for greater control and flexibility afforded by third-party trusts.

What documentation is needed to justify skincare purchases with SNT funds?

Meticulous documentation is crucial to support any SNT distribution, especially for items like medical-grade skincare that aren’t traditionally considered ‘basic’ needs. This includes a written prescription or letter from the beneficiary’s dermatologist outlining the specific dermatological condition, the reasons why the prescribed skincare is medically necessary, and how it will improve or maintain the beneficiary’s health. Receipts for all purchases are also essential. It’s also helpful to keep a log detailing how the skincare is being used and its impact on the beneficiary’s condition. Ted Cook advises clients, “Treat every distribution request as if it will be audited. Detailed records are your best defense.” He also stresses the importance of working with a qualified trust administrator familiar with special needs planning.

A story of a missed opportunity and potential consequences

Old Man Tiber, a carpenter, had meticulously crafted a trust for his grandson, Leo, who was born with a rare skin condition requiring specialized creams. Leo’s mother, eager to provide the best care, started routinely purchasing the expensive creams directly with SNT funds, without seeking prior approval or documenting the medical necessity. The trust administrator, overwhelmed with requests, didn’t initially question the purchases. However, during a routine Medi-Cal eligibility review, the large skincare expenses raised red flags. Leo’s mother was asked to provide justification, but lacked the necessary documentation. The state threatened to recalculate Leo’s eligibility, potentially deeming him ineligible for vital benefits. It was a tense situation that could have been easily avoided.

How proactive planning saved the day

Thankfully, Leo’s mother sought assistance from Ted Cook. Ted reviewed the trust documents and, working with Leo’s dermatologist, compiled a comprehensive medical report outlining the condition and the necessity of the specialized creams. He then submitted a detailed request to the trust administrator, along with supporting documentation. The trust administrator, now armed with the necessary information, successfully justified the purchases to Medi-Cal, preserving Leo’s benefits. From that day forward, all skincare purchases were pre-approved and meticulously documented, ensuring compliance and peace of mind. It became a prime example of how proactive planning and detailed record-keeping can safeguard a beneficiary’s future.

What role does the trustee play in approving these purchases?

The trustee has a fiduciary duty to manage the SNT responsibly and in the best interests of the beneficiary. This includes carefully reviewing all distribution requests, ensuring they comply with the trust terms and applicable laws, and documenting the rationale for each approval. For purchases like medical-grade skincare, the trustee must proactively request documentation from the beneficiary or their representative to verify the medical necessity and potential impact on public benefits eligibility. The trustee isn’t expected to be a medical expert, but they must exercise reasonable diligence and seek clarification when needed. “A good trustee is a gatekeeper, ensuring that funds are used wisely and in accordance with the law,” Ted Cook explains. “They’re also an advocate for the beneficiary, working to maximize their quality of life while protecting their essential benefits.”


Who Is Ted Cook at Point Loma Estate Planning Law, APC.:

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